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The COVID-19 pandemic shined a spotlight on the data gap in long-term care. To address this need, the National Institute on Aging funded the Long-Term Care (LTC) Data Cooperative, a collaboration among providers and stakeholders in academia, government, and the private sector. The LTC Data Cooperative assembles resident data from the major long-term care electronic medical record (EMR) vendors.
These data serve four key purposes:
1. Healthcare operations/population health analytics
2. Public health surveillance
3. Observational, comparative effectiveness research
4. Clinical research studies
For approved research studies, electronic health record (EHR) data can be linked with Medicare claims and other data from the Centers for Medicare & Medicaid Services (CMS) via the NIA Data LINKAGE Program.